I need help - persistent infection, no support

[tilray34]

Hi,

I'm from Canada and tested positive for h pylori as early as 2015 (I'm 28 this nightmare started 4~ years ago). My doctor treated me a few times with antibiotics over 3 years (3 times in total i think). I have been in chronic pain nearly since then, the acid reflux has died down and i've been on PPIs for a while.

However, the PPIs aren't working, i am diagnosed with "Severe H pylori induced chronic active gastritis with focal pancreatic metaplasia) despite taking dexilant daily, and my recent scope showed H pylori - again. My doctor never had it confirmed it was eradicted after previous treatments.

Do people get better after this long?

My symptoms are, chronic belching, throat pain, constant gurgling, sore throat, bad taste in mouth and an inflamed/sore stomach. I am on day 9 of the quad therapy and it's pretty damn rough.

I am on what i think is my second quadruple therapy, is taking the medication twice bad? This whole thing has made me incredibly anxious, i'm on antibiotic treatment 3 or 4 now...

metronidazole 500 mg x4 a day
tetracycline 500 mg x4 a day
Bismuth 550 mg x4 a day
60 mg dexilant

[Helico_expert]

You are on a pretty good and effective treatment.

remember to get a follow up breath test, one month after your treatment is done.

[tilray34]

Everywhere i read online says that GERD/LPR have no relationship with H Pylori - yet this forum does. Is iit that they do not know enough? Does curing H Pylori always improve symptoms?

If i have chronic severe gastritis, is that the cause for my GERD or a contributor?

[Helico_expert]

There are many GERD patients dont carry H. pylori. Hence GERD is "not" related to GERD.
GERD is probably due to the damage of your oesophagus sphincter. How it got damaged is not clear. H. pylori is probably one of many factors that contribute to its damaged.

[Lindal63]

Are you taking a probiotic along with antibiotics? Take it after or before 2/3 antibiotics. Try to find a probiotic that relieves antibiotics like l rhamnosus or acidophilus. Also take prebiotic and slippery elm powder will help your sore throat. Do you take antibiotics empty stomach? Maybe have a snack with antibiotics to reduce nausea. You also have to stick a bland diet to avoid nausea. Min sugar and no spicy. Avoid dairy

[Lindal63]

Are you taking a PPI? Most important is PPI and bismuth. 7th, 10th,14th of treatment you must throw away toothbrush and clean your whole house as h pylori can resurface.

[Helico_expert]

Just want to clarify that H. pylori doesnt survive well outside human body.
so H. pylori cannot survive on dry surface, water, or toothbrush.

[Lindal63]

it lives on dry objects for 6-8 hours and months in water and food. Your toothbrush has the most bacteria

[Helico_expert]

I would like to ask you where you get that information from.
In our laboratory, H. pylori doesnt survive well on dry surface and water.

[elihu23]

This has been my experience. I too was diagnosed with Helicobacter Pylori many years ago. The doctor found it because he prescribed a stool test as part of my physical. I was given several rounds of antibiotics. Despite the drugs, the doctor said I was still testing positive. He finally recommended broccoli sprouts. Noting that it could be as reliable as antibiotics, which may have been a bit of an exaggeration. All my research suggests that it only goes dormant. However, it does indeed suppress the effects of h. pylori to the point where it is virtually eradicated, in a very short time and with no side effects. If I relent, the symptoms return. It was so bad that I could only sleep on my left side. In about two weeks of broccoli sprouts my symptoms are gone and I can sleep on any side I want. The hassle is that I've got to keep up the broccoli sprouts--probably for life. I sprout them at home.

I've had a hard time getting doctors to look for h. pylori. I've had some say that they weren't sure that eradication was a good idea. Others usually want to do an endoscopy and they say they check for it, and claim it's not present. Invasive detection methods, however, are less sensitive than non-invasive ones. I would still get bad symptoms, usually when I go to bed, where I wake up and think I'm having a heart attack--usually if I shift to the wrong side. Hence, I suspect they are wrong. The excellent results I get from broccoli sprouts have had me put off addressing the issue conventionally because I know I am doing no harm. The results are very good, if a little inconvenient. I'm curious if anyone knows of any long term studies with eradication methods. Thanks.