Starting 2021 January/March, I had the same issues as most, which were severe stomach pain, constipation, haemorrhoids dizziness, nausea , brainfog, aches, unable to get out of bed most mornings, I started feeling internal tremors with the pain which progressed more and more over the years, by February 2021 I would feel fatigue that comes on full on that I would need to sleep, flakey dryness, my ankles and feet became swollen I could barely walk and flakey dryness in my extremities, diarrhoea and this is when I was taken seriously to be referred to an endoscopy.
I went in for the endoscopy March 2021 and after a few days I started to feel full blown debilitating attacks which I didn’t have before and it comes on every single day just at random times or exactly when I’ve had something to eat - each time it starts with the same stomach pain, the first few times my family rushed me to the hospital but now I just live through it as my doctor basically called me a hypochondriac because the symptoms aren’t there when I finally scheduled an appt .. although I’ve never complained about anything before except stomach issues - it starts with upset stomach and nausea but won’t vomit, heart palpitations, my scalp starts to feel tingly and painful and hot and electricity shooting pains over my head and sometimes boulder or arms , Ear pressure starts in both ears and sometimes it’s just one, the heat from my head spreads around my scalp and pressure all around my head spreads in waves and I get severely itchy in my head and all the way down my neck, and extremities every single time - my legs buzz and my extremities feel numb and swollen to the touch, and the pins and needles all over my body is so unsettling as if there’s insects crawling all over me and into my ears - all I can do is lay down and cry for hour until it subsides Which is usually me falling asleep from exhaustion and palpitations. When it ends my whole body is buzzing and my feet are numb and burning - Recently, the swell on my feet has mostly gone but it comes back when I feel a stomach upset and gurgle, and it’s painful to walk since the attacks began, I find it difficult to walk to the kitchen or the toilet, It seems in the last few days the numbness has progressed to my throat and my tongue is starting to tremor, the main symptoms is just pressure in my head, that comes with ear pain, electrics shoots in head and pain and unrelenting itch spreading down to my neck and torso, it isn’t particularly painful but it’s debilitating and I lose track of time as all I can do is close my eyes and wait for it to end - and it keeps coming back again and again for weeks now, the ear pain and ringing it leaves it’s literally driving me mad - I’ve had the gp’s do the usual blood works and tests, and some ultrasound sod my kidneys and bladder all came out perfect - after I was told its in my head by my extremely busy doctor who would only give me five or so minutes to discuss it - also i found my palpitations and internal feelings and h pylori symptoms hard to describe on the spot I’m not sure what to do - I am finally well enough now to finally take my antiobiotics which were prescribed weeks ago. I definitely know the neuro symptoms came on after the endoscopy so I’m wondering can it be an issue of the endoscopy irritating my the h pylori - the last few weeks I was able to do nothing but sit in bed from the debilitation so I was able to pay attention to my symptoms and it seems to strongly correlate with pain and tenderness in my stomach or when I eat; my skin on my hands, feet have dried and my nails become so brittle and the burning in my hands and legs is unrelenting.
As I write this my abdomen is on fire, my entire body is trembling, itchy, and buzzing, and my belly, chest and throat is burning but surprisingly I’ve had no reflux since mid 2020 ( I changed my diet ). I just recovered from a 2 hr attack tonight. I don’t think I can continue with this, and I have been two gps who are reluctant to do anything; they won’t even discuss my h pylori diagnosis and the possibility it can be from that or refer me anywhere, it seems they don’t even know that it may cause neuropathy they have a blank face when I ask anything h pylori related in desperation - through the many visits the only time b pylori is brought up is by me, I also had to chase up my own medication kit from the hospital that diagnosed me. I feel totally helpless - does anyone face any debilitating neurological symptoms, neuropathy or progressing tremors from h pylori - at this point I don’t know how to even cross it out as something unrelated as I have no gp willing to listen or investigate or even refer me to a private specialist, I’m at a dead end - so I just sit in bed and ride out the attacks, and hope the antibiotics treatment for the h pylori relieves it all - the closest I found to my symptoms was a study done on h pylori toxicosis, or how h pylori contributes to Parkinson’s.
I’m wondering if anyone else has ever felt these symptoms after an endoscopy or in general