Re: Helicobacter aftermath
Posted: Mon Apr 22, 2013 2:15 am
HELLO EVERYONE,
It's been 2 years since my last post (check the first few pages of this thread) and things have changed dramatically for myself. I will however bring everyone up to speed with my health/tests/status first.
I DO NOT CONDONE THAT PEOPLE SHOULD GO DIRECTLY DOWN MY TREATMENT PATH AND EVERYONE SHOULD FULLY REALISE THAT THEIR BODIES ARE DIFFERENT TO OTHER PEOPLE - that being said, lets crack on!
I am a 26 year old male who suffered H.Pylori just over 3 years ago. Symptoms were, heartburn, excessive nausea and vomiting, weight loss and upper left abdominal pain. I had an OGD to confirm diagnosis and recieved standard triple therapy as per NICE guidelines. Over the coming months, my symptoms remained but the H.Pylori was eradicated (as confirmed by the second OGD). I was advised that over the coming months the symptoms (nausea + abdo pain = functional dyspepsia) would subside and rightly so, given that the majority of systematic reviews on H.Pylori indicate so and do not acknowledge the prevalence of an 'aftermath'.
Over the next year, I continued to harrass medical professionals about my symptoms as it was having a strong impact on my poor quality of life. I became socially reclusive, I stopped playing al sports (because of nausea) and my nutrition was extremely poor. All available tests (CT/USS/Bloods) were NAD and by the time it hit feb 2011 I was days from taking my own life, because my quality of life was so poor and I couldn't take the pain any longer. My friends stepped in and helped me and my depression was formally recognised. For the next 2 years I struggled on.
Around 6 months ago I decided to re-initiate medical investigations as one last shot. This was the fourth consultant I had seen on this matter. I went in with an open mind and ultimately knew that there was very little he or she could do, so I was open to any premise.
First I had a repeat OGD (my 3rd one so far) but performed in a way that I could see the tv as the camera went down. My stomach was healthy and no H.Pylori was present. This allowed my mind to accept that there was nothing physically visible irritating the stomach.
As a result we decided to treat my symptoms; STOMACH PAIN and NAUSEA as seperate entities.
To treat the pain, I was started on Nortriptyline 10mg and advised by the 'Pain Clinic' to titrate this up to 75 mg slowly. This took 2 months to achieve as it made me sleepy and my mouth dry but each time I increased the dose, my pain slowly faded more and more. By the time I hit 75mg, the pain had gone completely, and even in the mornings when the pain used to be at its worst, I felt pain free which was an amazing feeling.
As a result of now being pain free 24/7, my nausea slowly subsided. To this day it is currently half of what it used to be but the recovery has been great and very pleasing. My quality of life has improved DRAMATICALLY, I can now eat what I want, when i want and I don't have abdo pain any more. I guess the impression therefore is ?nerve pain secondary to gastric ulcers. Unfortunately I cannot find many studies relating to this (And as a medical professional, I do alot of research!) so this area is very much in the dark at the moment.
Therefore, for those who perhaps still have symptoms from H.Pylori i.e. nausea and abdominal pain, worst in the mornings when you get up, but not as bad when you get a lie in, you can perhaps suggest to TRIAL something for nerve pain. However as I said earlier, I cannot advocate that people follow this word for word or take my story as legit evidence, rather you should seek yourself to find the most holistic solution. I promised myself that if i ever found a cure/solution, I would share that information so that people do not have to live in pain anymore.
Good luck to you all and feel free to message me if you are after some more information.
Craig x
It's been 2 years since my last post (check the first few pages of this thread) and things have changed dramatically for myself. I will however bring everyone up to speed with my health/tests/status first.
I DO NOT CONDONE THAT PEOPLE SHOULD GO DIRECTLY DOWN MY TREATMENT PATH AND EVERYONE SHOULD FULLY REALISE THAT THEIR BODIES ARE DIFFERENT TO OTHER PEOPLE - that being said, lets crack on!
I am a 26 year old male who suffered H.Pylori just over 3 years ago. Symptoms were, heartburn, excessive nausea and vomiting, weight loss and upper left abdominal pain. I had an OGD to confirm diagnosis and recieved standard triple therapy as per NICE guidelines. Over the coming months, my symptoms remained but the H.Pylori was eradicated (as confirmed by the second OGD). I was advised that over the coming months the symptoms (nausea + abdo pain = functional dyspepsia) would subside and rightly so, given that the majority of systematic reviews on H.Pylori indicate so and do not acknowledge the prevalence of an 'aftermath'.
Over the next year, I continued to harrass medical professionals about my symptoms as it was having a strong impact on my poor quality of life. I became socially reclusive, I stopped playing al sports (because of nausea) and my nutrition was extremely poor. All available tests (CT/USS/Bloods) were NAD and by the time it hit feb 2011 I was days from taking my own life, because my quality of life was so poor and I couldn't take the pain any longer. My friends stepped in and helped me and my depression was formally recognised. For the next 2 years I struggled on.
Around 6 months ago I decided to re-initiate medical investigations as one last shot. This was the fourth consultant I had seen on this matter. I went in with an open mind and ultimately knew that there was very little he or she could do, so I was open to any premise.
First I had a repeat OGD (my 3rd one so far) but performed in a way that I could see the tv as the camera went down. My stomach was healthy and no H.Pylori was present. This allowed my mind to accept that there was nothing physically visible irritating the stomach.
As a result we decided to treat my symptoms; STOMACH PAIN and NAUSEA as seperate entities.
To treat the pain, I was started on Nortriptyline 10mg and advised by the 'Pain Clinic' to titrate this up to 75 mg slowly. This took 2 months to achieve as it made me sleepy and my mouth dry but each time I increased the dose, my pain slowly faded more and more. By the time I hit 75mg, the pain had gone completely, and even in the mornings when the pain used to be at its worst, I felt pain free which was an amazing feeling.
As a result of now being pain free 24/7, my nausea slowly subsided. To this day it is currently half of what it used to be but the recovery has been great and very pleasing. My quality of life has improved DRAMATICALLY, I can now eat what I want, when i want and I don't have abdo pain any more. I guess the impression therefore is ?nerve pain secondary to gastric ulcers. Unfortunately I cannot find many studies relating to this (And as a medical professional, I do alot of research!) so this area is very much in the dark at the moment.
Therefore, for those who perhaps still have symptoms from H.Pylori i.e. nausea and abdominal pain, worst in the mornings when you get up, but not as bad when you get a lie in, you can perhaps suggest to TRIAL something for nerve pain. However as I said earlier, I cannot advocate that people follow this word for word or take my story as legit evidence, rather you should seek yourself to find the most holistic solution. I promised myself that if i ever found a cure/solution, I would share that information so that people do not have to live in pain anymore.
Good luck to you all and feel free to message me if you are after some more information.
Craig x