Strange Helicobacter, please share your insights.....
Posted: Sat Jan 28, 2023 11:47 pm
Hello everybody
I am from Poland, and I would therefore like to ask you for a brief assessment of my situation.
Brief history
2008 I had a contact with a person (we were a couple) who was infected with H.Pylori and was subject to eradication after an ulcer rupture.
2009 I had first symptoms, mainly empty belching, heartburn, I ended up in hospital (pain). Gastroscopy, rectoscopy - no abnormalities. PPI prescribed. No improvement at all. Dizziness appears, problems with allergies.
2010 Gastroscopy: gastritis, at my request CLO . CLO negative to the doctor's surprise, in his opinion it looks like helicobacter. . But they did not do the treatment
7 years pass.
During these years I have problems all the time, I eat maybe 10 products, I can hardly take lactose or simple sugars, sometimes I take antacids, periodically PPI. About once a year I do a stool test - negative for 7 years. I am very careful what I eat, I have the impression that everything rots in my stomach (subjective feeling).
The doctor thinks it is functional dyspepsia. I am being treated psychiatrically, the doctors say it is from stress. I have been taking SSRIs for three years. No effect.
2017 -continued nausea, empty bounces, sensation of food rotting in the stomach, terrible mouth odour, yellow tongue . I do IGG IGM and IGA - all results are practically zero. They say again that it is functional dyspepsia. On gastroscopic examination no metaplasia, no atrophy.
In 2018 I again do a breath test-result after 30 minutes (INFAIN of German manufacturer) exactly 0.0-negative.
In the same year, completely powerless, I do the traditional test for helicobacter from the stool - to my surprise it is positive. I go to the doctor. I am given a pylera straight away. For the first time. I undergo a 10-day treatment. And I'm back to life. In the period from 2018-2021 I have no symptoms, I eat everything, I have no allergies, I have the impression that the eradication has succeeded perfectly, the functional dyspepsia in all forms disappears. I do IGG along the way and interestingly only after the eradication does the IGG come out positive, this is the only positive result so far as far as the blood is concerned. All the symptoms recede and I feel like I did in my younger years. It was a good time....
In 2021, my symptoms start to recur. They are the same as before eradication but at an early stage. At first I fight with diet, use broccoli sprouts, garlic, exclude simple sugars, but basically I see that everything is heading towards what it was again. Slowly my condition is getting worse. I am starting to do IGG negative IGM negative IGA 0.12 (also negative) tests. 5 or 6 stool tests negative.
Gastroscopy: negative CLO, negative histopathology. I go for a colonoscopy, all normal.
A doctor in Poland decides that I should take pylera without being positive. I go on treatment and everything is really good.
I can eat normally again, everything is fine. Unfortunately, at the end of 2022 (and therefore sooner), the symptoms I already know return. I am currently eating a few foods again.
My question is absurd, but maybe you are able to answer it at least a little. Is such a "hiding" for this bacteria possible? Or am I just exaggerating. I don't understand this situation, that for three years after pylera or one year after pylera I am just a normal person leading a normal life (no dyspepsia at all) and my stomach accepts all foods and now I am back to the absurd situation and can eat nothing.
I currently have no positive result for helicobacter and am seriously wondering what to do next I have read a lot on here about the load of this bacteria and that if the acidity in the stomach is abnormal then these tests do not come out. I don't know whether to look for another pathogen or to hope that one day I will just find it,as I once did.
Thank you
I am from Poland, and I would therefore like to ask you for a brief assessment of my situation.
Brief history
2008 I had a contact with a person (we were a couple) who was infected with H.Pylori and was subject to eradication after an ulcer rupture.
2009 I had first symptoms, mainly empty belching, heartburn, I ended up in hospital (pain). Gastroscopy, rectoscopy - no abnormalities. PPI prescribed. No improvement at all. Dizziness appears, problems with allergies.
2010 Gastroscopy: gastritis, at my request CLO . CLO negative to the doctor's surprise, in his opinion it looks like helicobacter. . But they did not do the treatment
7 years pass.
During these years I have problems all the time, I eat maybe 10 products, I can hardly take lactose or simple sugars, sometimes I take antacids, periodically PPI. About once a year I do a stool test - negative for 7 years. I am very careful what I eat, I have the impression that everything rots in my stomach (subjective feeling).
The doctor thinks it is functional dyspepsia. I am being treated psychiatrically, the doctors say it is from stress. I have been taking SSRIs for three years. No effect.
2017 -continued nausea, empty bounces, sensation of food rotting in the stomach, terrible mouth odour, yellow tongue . I do IGG IGM and IGA - all results are practically zero. They say again that it is functional dyspepsia. On gastroscopic examination no metaplasia, no atrophy.
In 2018 I again do a breath test-result after 30 minutes (INFAIN of German manufacturer) exactly 0.0-negative.
In the same year, completely powerless, I do the traditional test for helicobacter from the stool - to my surprise it is positive. I go to the doctor. I am given a pylera straight away. For the first time. I undergo a 10-day treatment. And I'm back to life. In the period from 2018-2021 I have no symptoms, I eat everything, I have no allergies, I have the impression that the eradication has succeeded perfectly, the functional dyspepsia in all forms disappears. I do IGG along the way and interestingly only after the eradication does the IGG come out positive, this is the only positive result so far as far as the blood is concerned. All the symptoms recede and I feel like I did in my younger years. It was a good time....
In 2021, my symptoms start to recur. They are the same as before eradication but at an early stage. At first I fight with diet, use broccoli sprouts, garlic, exclude simple sugars, but basically I see that everything is heading towards what it was again. Slowly my condition is getting worse. I am starting to do IGG negative IGM negative IGA 0.12 (also negative) tests. 5 or 6 stool tests negative.
Gastroscopy: negative CLO, negative histopathology. I go for a colonoscopy, all normal.
A doctor in Poland decides that I should take pylera without being positive. I go on treatment and everything is really good.
I can eat normally again, everything is fine. Unfortunately, at the end of 2022 (and therefore sooner), the symptoms I already know return. I am currently eating a few foods again.
My question is absurd, but maybe you are able to answer it at least a little. Is such a "hiding" for this bacteria possible? Or am I just exaggerating. I don't understand this situation, that for three years after pylera or one year after pylera I am just a normal person leading a normal life (no dyspepsia at all) and my stomach accepts all foods and now I am back to the absurd situation and can eat nothing.
I currently have no positive result for helicobacter and am seriously wondering what to do next I have read a lot on here about the load of this bacteria and that if the acidity in the stomach is abnormal then these tests do not come out. I don't know whether to look for another pathogen or to hope that one day I will just find it,as I once did.
Thank you